Patient Support Groups

While the internet has made a wealth of medical information available to our patients, we have found that it can be difficult to assess the quality of that information. We consider the organizations on this page to be good sources of information an resources for our patients.

Dermatology Associations

Support Groups

Albinism National Organization for Albinism and Hypopigmentation
Alopecia Areata National Alopecia Areata Foundation
Congenital Nevi Nevus Outreach
Nevus Network
Ectodermal Dysplasia National Foundation for Ectodermal Dysplasia
Ehlers-Danlos Ehlers-Danlos National Foundation
Epidermolysis Bullosa DEBRA
Eczema National Eczema Association (USA)
Ichthyosis Foundation for Icthyosis and Related Skin Types
Incontinentia Pigmenti National Incontinentia Pigmenti Foundation
Lupus Erythematosus Lupus Foundation of America
Mastocytosis Mastocytosis Society
Mycosis Fungoides Mycosis Fungoides Foundation
Neurofibromatosis National Neurofibromatosis Foundation
Pediculosis National Pediculosis Association
Pemphigus National Pemphigus Foundation
Pityriasis Rubra Piliaris PRP support group
Porphyria American Porphyria Foundation
Porphyria Web Links
Pseudoxanthoma Elasticum National Association for Pseudoxanthoma Elasticum
PXE International, Inc.
Psoriasis National Psoriasis Foundation
Scleroderma Scleroderma Foundation
Skin Cancer Melanoma Patients’ Information Page
Tuberous Sclerosis National Tuberous Sclerosis Association
Vitiligo National Vitiligo Foundation
Xeroderma Pigmentosum Xeroderma Pigmentosum Society